Table 1 Changes in the interview... | Emerald Publishing

Table 1

Changes in the interview questions after piloting

Survey questions before piloting	Changes after piloting
1 Could you please tell the story of when you discovered you had Lyme Disease?	1 Could you please explain how and when you discovered that you had Lyme disease? [Prompt: When did you receive your diagnosis, or are you still in the process of seeking a diagnosis? / are any of your other chronic conditions caused by lyme disease co-infections?]
2 Have the activities you used to do prior to your condition changed? If yes, how so? Please provide as many examples as possible	2 Have the activities you used to do prior to your condition changed? If yes, how so? Please provide as many examples as possible
3 Have you had to make any adjustments to take part in any activities you want, need, or are expected to do? If yes, please explain the adaptation and if it helped	3a Have you had to make any adjustments to take part in any activities you want, need, or are expected to do? 3b. Have the adaptations that you have made helped and if yes, how so?
4 Are there any activities from the past that you are not currently taking part in but would love to do so in the future? For example, this could be related to your work, leisure, self-care, quality of sleep etc. [Prompt: What are the activities that are most meaningful to you? Are you completing them at the moment?]	4 Are there any activities from the past that you are not currently taking part in but would love to do so in the future? For example, this could be related to your work, leisure, self-care, quality of sleep etc. [Prompt: What are the activities that are most meaningful to you and why? Are you completing them at the moment?]

Survey questions before piloting	Changes after piloting
1 Could you please tell the story of when you discovered you had Lyme Disease?	1 Could you please explain how and when you discovered that you had Lyme disease?[Prompt: When did you receive your diagnosis, or are you still in the process of seeking a diagnosis? / are any of your other chronic conditions caused by lyme disease co-infections?]
2 Have the activities you used to do prior to your condition changed? If yes, how so? Please provide as many examples as possible	2 Have the activities you used to do prior to your condition changed? If yes, how so? Please provide as many examples as possible
3 Have you had to make any adjustments to take part in any activities you want, need, or are expected to do? If yes, please explain the adaptation and if it helped	3a Have you had to make any adjustments to take part in any activities you want, need, or are expected to do?3b. Have the adaptations that you have made helped and if yes, how so?
4 Are there any activities from the past that you are not currently taking part in but would love to do so in the future? For example, this could be related to your work, leisure, self-care, quality of sleep etc.[Prompt: What are the activities that are most meaningful to you? Are you completing them at the moment?]	4 Are there any activities from the past that you are not currently taking part in but would love to do so in the future? For example, this could be related to your work, leisure, self-care, quality of sleep etc.[Prompt: What are the activities that are most meaningful to you and why? Are you completing them at the moment?]

Source(s): Table created by authors