Table 2

Generating initial codes

ParticipantExtractInitial codes
P3“Just in a zombie state [C1] all the time or if I’m able to sleep I sleep. I no longer do anything they I used to love to do, I can’t even video game or watch sports and def can no longer run or play soccer”[C2][C1] Perception of self
[C2] Occupational disruptions
[C3] Strategies to adapt
[C4] Physical changes
[C5] long term impact
[C6] Social relationships
[C7] Barriers to sustain participation levels
[C8] Being misunderstood
P8“Yes. I have to take lots of breaks [C3] when doing anything. Including normal activities like laundry”
P15“Being tired and in pain [C4] all the time really limits social activity [C2]. Diet has changed [C3]. No Sugar/ Gluten/ processed foods”
P17“Constantly. Only low-level exercise [C4]. It was near fatal Lyme, and I was in a coma, and my parents told me I wouldn’t survive. I went in as an elite athlete and came out barely able to walk and have never recovered [C2]. And told I am a time waster and lazy [C8]. My weight dropped to 6 stone” [C4]
P27“For a long time, I just couldn’t do things, so I avoided things [C2]. Lost a lot of my community and became very isolated [C6]. All my relationships have suffered. My symptoms meant that a lot of things weren’t available to me anymore and there aren’t really adjustments [C7] that would enable me to maintain those things to the same level”

Source(s): Table created by authors

or Create an Account

Close subscription notice
Close access options