Generating initial codes
| Participant | Extract | Initial codes |
|---|---|---|
| P3 | “Just in a zombie state [C1] all the time or if I’m able to sleep I sleep. I no longer do anything they I used to love to do, I can’t even video game or watch sports and def can no longer run or play soccer”[C2] | [C1] Perception of self [C2] Occupational disruptions [C3] Strategies to adapt [C4] Physical changes [C5] long term impact [C6] Social relationships [C7] Barriers to sustain participation levels [C8] Being misunderstood |
| P8 | “Yes. I have to take lots of breaks [C3] when doing anything. Including normal activities like laundry” | |
| P15 | “Being tired and in pain [C4] all the time really limits social activity [C2]. Diet has changed [C3]. No Sugar/ Gluten/ processed foods” | |
| P17 | “Constantly. Only low-level exercise [C4]. It was near fatal Lyme, and I was in a coma, and my parents told me I wouldn’t survive. I went in as an elite athlete and came out barely able to walk and have never recovered [C2]. And told I am a time waster and lazy [C8]. My weight dropped to 6 stone” [C4] | |
| P27 | “For a long time, I just couldn’t do things, so I avoided things [C2]. Lost a lot of my community and became very isolated [C6]. All my relationships have suffered. My symptoms meant that a lot of things weren’t available to me anymore and there aren’t really adjustments [C7] that would enable me to maintain those things to the same level” |
| Participant | Extract | Initial codes |
|---|---|---|
| P3 | “Just in a zombie state [C1] all the time or if I’m able to sleep I sleep. I no longer do anything they I used to love to do, I can’t even video game or watch sports and def can no longer run or play soccer”[C2] | [C1] Perception of self |
| P8 | “Yes. I have to take lots of breaks [C3] when doing anything. Including normal activities like laundry” | |
| P15 | “Being tired and in pain [C4] all the time really limits social activity [C2]. Diet has changed [C3]. No Sugar/ Gluten/ processed foods” | |
| P17 | “Constantly. Only low-level exercise [C4]. It was near fatal Lyme, and I was in a coma, and my parents told me I wouldn’t survive. I went in as an elite athlete and came out barely able to walk and have never recovered [C2]. And told I am a time waster and lazy [C8]. My weight dropped to 6 stone” [C4] | |
| P27 | “For a long time, I just couldn’t do things, so I avoided things [C2]. Lost a lot of my community and became very isolated [C6]. All my relationships have suffered. My symptoms meant that a lot of things weren’t available to me anymore and there aren’t really adjustments [C7] that would enable me to maintain those things to the same level” |
Source(s): Table created by authors
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