Table 2

Stage 1 topics and resultant themes

TopicsThemes
  • Lack of emotional preparedness for EOL discussions

  • Anxiety and understanding of diagnosis

  • Fear and sensitivity of death and hospitalization

Family emotional unpreparedness
  • Personal challenges and realization about individual journeys and avoiding personal biases

  • Importance of self-awareness and clear intent in EOL communication

  • Professional risks about staying within the scope of practice and discussing EOL

Personal challenges in delivering EOL care
  • Treatment decisions and the delay in recognizing and initiating EOL care

  • Perception of general medicine’s perspective on EOL care

  • Challenges in identifying and discussing EOL care due to medical team dynamics

Organizational constraints delays
  • Financial constraints for families in accessing additional resources

  • Lack of resources for nursing care in the community

  • Impact of family members’ work commitments on caregiving and affordability of care

Access to adequate community resources for EOL care
  • Inability of the health service to rapidly respond as people die quickly or are too unstable for transfer

  • Family unpreparedness for EOL care at home

  • Challenges of lack of support and older people providing care

Rapid escalation to EOL
  • Providing resources and support for families in EOL planning

  • Encouraging open communication with person and families while considering willingness to engage in discussions

  • Consider person and family preferences such as cultural considerations and comfort in EOL care location

Promoting person-centred care and communication
  • Junior staff find EOL situations confronting due to lack of experience

  • Learning and gaining knowledge through educational modules

  • Completing training on difficult conversations

Enhanced staff competence and confidence
  • Limited knowledge due to shift work

  • Doctors’ preference to defer decisions and discussions about EOL care to others

  • Fear of working outside professional scope, rely on protocol, and concern about personal/professional risk

Staff hold limited accountability
  • Building rapport through person-centered communication

  • Compassionate communication for empathy and understanding

  • Tailored information to individual’s needs

Improved person and family involvement in decision-making
  • Early EOL care discussions lacking

  • Staff detachment from patient needs

  • Reluctance to take personal responsibility

Depersonalized care
  • Emotional discomfort in EOL discussions

  • Professional strain experienced by HCP

  • Positive outcomes from professional development initiatives

Staff well-being in EOL care situations

Note(s): EOL = end-of-life

Source(s): Authors’ own work

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