Table 3

A good death – data structure and analysis to articulate insights for graphic expression

Sample meaning unitCondensed meaningTheme
Person is surrounded by blanket of family carers were loving and skilled remain focus on the value of end of life period to focus on relationships, healing and grievingFamily support at end of life is criticalImportance of family support in providing comfort and accessibility for end of life care at home
People dying at home experience warmth of home-like environment, including sounds, smells, comforts including gathering of multiple generations
Have some time outside people at EOL are very different and have different needs
Familiarity and comfort of home can improve quality of end of life
People at home create workarounds such as using a bell timely review of family capacity is important prepare for home care while in hospitalThe home can be accessible for end-of-life care
Hand signifying spiritual, social, emotional, physical well-being supported with resources, care and equipmentCare includes the mind, body and spiritThe need for culturally and spiritually appropriate care
Diversity of person at EOL (e.g. age, gender, disease(s), interests, beliefs, religiosity)
Ensure care is culturally appropriate, spiritually aware and holistic
A rapid response discharge team could provide the necessary resources to support transition home. It would be interdisciplinary, providing direct support to patient and carers, and liaise with community servicesDesign a process to support easy transitionStructures to support transition to home
Draw on existing networks, such as the compassionate communities network
Need to draw upon and grow capacity within the community – resources produced and animated within the village, with a focus on emotional and social well-being
Use existing networks
Access to speciality resources such as equipment and medicationsIndividual coordinated support
Value of a coordinator and good care plan
Consider a case management approach
Can learn from the NDIS rollout
Source(s): Authors’ work

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