Table II

The CRAC framework overview of the overarching theme, themes and subthemes

SubthemesThemesOverarching theme
Feeling involved
Emotional impact
Being in a heterogeneous context
Knowing the others
A sense of Community (C)Mediating lived experience
Being invited
Being important
Being taken for granted
The complexities of involvement
Experiencing a freedom of choice
Feelings of Reciprocity (R) 
Expecting action
Expecting feedback
Expecting to recognize oneself
Attitudes toward R&D
A possibility to influence
Contributing with knowledge and commitment
Being in the hands of the interpreter
Hoping for change but fearing false hopes
Illuminating complexity but risking generalizations
Jeopardizing voluntarism and freedom of choice
Speaking for other carers
A sense of Advocacy (A) 
The heterogeneity of carers
Hindering aspects in a family context
Hindering aspects from a practical view
Hindering aspects within the individual
Challenges from an R&D perspective
Experiencing personal change
The need for a leading light
Reflecting on Circumstantiality (C) 

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