Table A1 Survey instrument questions...

Table A1

Survey instrument questions

Category/construct	Source(s)	Items
Overt health behaviors
Co-creation in-clinic	Sweeney et al. (2015)	If I am unwell I want to assume an active role in my care
		It is important for me to participate in decisions concerning my treatment
		When I am unwell I actively communicate with health care
Co-creation ex-clinic	Glasgow et al. (2005)	I actively try to keep myself healthy and well-being
		I exercise regularly
		I like to try new things that could influence my health positively
		I make sure to eat a healthy diet
Information seeking	Dutta-Bergman (2005)	I actively seek for information concerning the diagnostics I have been given
Information seeking	Dutta-Bergman (2005)	I actively seek information about my symptoms before I decide to contact health care services
Avoidance behavior	[New items]cf. Moore et al. (2004)	I avoid contact with health care as much as possible
		When I am unwell I try self-treatment before contacting primary care
Use of alternative treatment	[New item]cf. Frass et al. (2012)	I seek treatments others than those recommended by health care
Adherence to treatment plan	Kubica et al. (2017)	When I am ill I follow treatments agreed upon with health care
Preference to peer support	[New item]	If I came to experience problems with my health I would gladly come in contact with others having the same health related problems
Subjective well-being
Quality of life	Fox (2004)	I am satisfied with my quality of life
		I experience myself as being well
Perception of own health	Zhang et al. (2007)	I experience my health as good
Sens of meaning	Ryff (1989) in Smith et al. (2017)	My life feels meaningful
Traits, emotions, and self-beliefs
Sense of competence	Sheldon and Hilpert (2012)	I am good at successfully complete difficult tasks and projects
		I find ways to solve my problems and achieve my goals
		I often feel that I am not competent in various situations (Reverse)
		I think I could learn anything needed concerning my own treatment
		I trust my ability to take care of my own health
Sense of relatedness	Sheldon and Hilpert (2012)	I feel part of the community I live in
		I get along well with the people I come into contact with
		I have many people who are close to me
		I often feel lonely (Reverse)
		There are people around me to help if I experience problems
Sense of autonomy	Sheldon and Hilpert (2012)	I have control over my life
Sense of autonomy	Sheldon and Hilpert (2012)	There is not much room for me to take decisions in my daily life (Reverse)
Sense of hopelessness	Beck et al. (1974)	If something can go wrong for me it will certainly happen
		The future seems hopeless to me, and I can't believe that things are changing for the better
Health-related anxiety	Beck et al. (1988)	I often fear having a severe disease
Health-related anxiety	Beck et al. (1988)	I often fear something bad will happen
Healthcare-related anxiety	Jaakkola et al. (2009)	I feel nervous when in contact with health care
Healthcare-related anxiety	Jaakkola et al. (2009)	I feel uncomfortable in health care environments
Usage of new technology	Bruner et al. (2007)	I like using new technology
Usage of new technology	Bruner et al. (2007)	I gladly purchase products or services online
Satisfaction with healthcare services	Fornell (1992)	I am satisfied with my health care provider
Trust in healthcare services	[New item]	I trust health care
Respect in healthcare services	Swedish National Patient Survey	When I am in contact with health care services I feel treated with respect and dignity regardless of my gender, sexual identity, ethnicity, religion, sexual inclination, disabilities or age
Preference healthcare continuity	[New item]
	cf. Jung et al. (2003)	It is important to me to meet the same staff when in contact with health care
Impulsivity	Caspi et al. (1997)	I often act before thinking
Indecisiveness	See Rassin et al. (2007)	I feel it is generally tough to have to make choices
Switching behavior	[New item]	I often switch service provider when I purchase products or services
Trust in others	Yamagishi and Yamagishi (1994)	People are generally honest
Social factors
Ongoing stressors	Troxel et al. (2003) in Smith et al. (2017)	I experience stress due to: [relationships, personal finance, work school, or other]
Engagement in social activities	Smith et al. (2017)	I have taken part in the listed social activities in the last 12 months: [courses, private parties, theater, sports event, etc.]
Demographics		Gender, age, living arrangements, education, employment

Category/construct	Source(s)	Items
Overt health behaviors
Co-creation in-clinic	Sweeney et al. (2015)	If I am unwell I want to assume an active role in my care
		It is important for me to participate in decisions concerning my treatment
		When I am unwell I actively communicate with health care
Co-creation ex-clinic	Glasgow et al. (2005)	I actively try to keep myself healthy and well-being
		I exercise regularly
		I like to try new things that could influence my health positively
		I make sure to eat a healthy diet
Information seeking	Dutta-Bergman (2005)	I actively seek for information concerning the diagnostics I have been given
Information seeking	Dutta-Bergman (2005)	I actively seek information about my symptoms before I decide to contact health care services
Avoidance behavior	[New items]cf. Moore et al. (2004)	I avoid contact with health care as much as possible
		When I am unwell I try self-treatment before contacting primary care
Use of alternative treatment	[New item]cf. Frass et al. (2012)	I seek treatments others than those recommended by health care
Adherence to treatment plan	Kubica et al. (2017)	When I am ill I follow treatments agreed upon with health care
Preference to peer support	[New item]	If I came to experience problems with my health I would gladly come in contact with others having the same health related problems
Subjective well-being
Quality of life	Fox (2004)	I am satisfied with my quality of life
		I experience myself as being well
Perception of own health	Zhang et al. (2007)	I experience my health as good
Sens of meaning	Ryff (1989) in Smith et al. (2017)	My life feels meaningful
Traits, emotions, and self-beliefs
Sense of competence	Sheldon and Hilpert (2012)	I am good at successfully complete difficult tasks and projects
		I find ways to solve my problems and achieve my goals
		I often feel that I am not competent in various situations (Reverse)
		I think I could learn anything needed concerning my own treatment
		I trust my ability to take care of my own health
Sense of relatedness	Sheldon and Hilpert (2012)	I feel part of the community I live in
		I get along well with the people I come into contact with
		I have many people who are close to me
		I often feel lonely (Reverse)
		There are people around me to help if I experience problems
Sense of autonomy	Sheldon and Hilpert (2012)	I have control over my life
Sense of autonomy	Sheldon and Hilpert (2012)	There is not much room for me to take decisions in my daily life (Reverse)
Sense of hopelessness	Beck et al. (1974)	If something can go wrong for me it will certainly happen
		The future seems hopeless to me, and I can't believe that things are changing for the better
Health-related anxiety	Beck et al. (1988)	I often fear having a severe disease
Health-related anxiety	Beck et al. (1988)	I often fear something bad will happen
Healthcare-related anxiety	Jaakkola et al. (2009)	I feel nervous when in contact with health care
Healthcare-related anxiety	Jaakkola et al. (2009)	I feel uncomfortable in health care environments
Usage of new technology	Bruner et al. (2007)	I like using new technology
Usage of new technology	Bruner et al. (2007)	I gladly purchase products or services online
Satisfaction with healthcare services	Fornell (1992)	I am satisfied with my health care provider
Trust in healthcare services	[New item]	I trust health care
Respect in healthcare services	Swedish National Patient Survey	When I am in contact with health care services I feel treated with respect and dignity regardless of my gender, sexual identity, ethnicity, religion, sexual inclination, disabilities or age
Preference healthcare continuity	[New item]
	cf. Jung et al. (2003)	It is important to me to meet the same staff when in contact with health care
Impulsivity	Caspi et al. (1997)	I often act before thinking
Indecisiveness	See Rassin et al. (2007)	I feel it is generally tough to have to make choices
Switching behavior	[New item]	I often switch service provider when I purchase products or services
Trust in others	Yamagishi and Yamagishi (1994)	People are generally honest
Social factors
Ongoing stressors	Troxel et al. (2003) in Smith et al. (2017)	I experience stress due to: [relationships, personal finance, work school, or other]
Engagement in social activities	Smith et al. (2017)	I have taken part in the listed social activities in the last 12 months: [courses, private parties, theater, sports event, etc.]
Demographics		Gender, age, living arrangements, education, employment

Note(s): [New item]: These survey items were developed during the project; see Methods

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