Themes, categories and codes from thematic analysis
| Codes | Categories | Themes |
|---|---|---|
| Child not understanding COVID-19 Loss of essential services Limited space Loss activities No services available Reduced respite Respite gone Transport stopped Unable to visit Work commitments Day to day routine gone No school Parents loss of autonomy over child No say Lack of options Nowhere to go | Everything stopped Loss of daily routine No control | World gone |
| 24 × 7 care Everything closes down Help removed when needed the most Home environment No check in No choice Isolating to protect child | Left on your own No help Isolating | Alone and isolated |
| Desperation Fight for supports Fight to access child Resumption of respite Needing a letter from a health-care professional to go certain places Needing more supports Promised supports but did not happen | In need of support Continuously trying to access supports Fighting to have services resumed | Constantly fighting |
| Doing the right thing Mental health affected Nightmare Parent getting Covid Sacrificing family life Self-cancelled services | Adverse effects of COVID-19 Implications for child Positive impact of COVID-19 Parental feelings and concerns | Negative and positive impact of COVID-19 on child and family |
| Codes | Categories | Themes |
|---|---|---|
| Child not understanding COVID-19 | Everything stopped | World gone |
| 24 × 7 care | Left on your own | Alone and isolated |
| Desperation | In need of support | Constantly fighting |
| Doing the right thing | Adverse effects of COVID-19 | Negative and positive impact of COVID-19 on child and family |
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