Table 2

Themes, categories and codes from thematic analysis

CodesCategoriesThemes
Child not understanding COVID-19
Loss of essential services
Limited space
Loss activities
No services available
Reduced respite
Respite gone
Transport stopped
Unable to visit
Work commitments
Day to day routine gone
No school
Parents loss of autonomy over child
No say
Lack of options
Nowhere to go
Everything stopped
Loss of daily routine
No control
World gone
24 × 7 care
Everything closes down
Help removed when needed the most
Home environment
No check in
No choice
Isolating to protect child
Left on your own
No help
Isolating
Alone and isolated
Desperation
Fight for supports
Fight to access child
Resumption of respite
Needing a letter from a health-care professional to go certain places
Needing more supports
Promised supports but did not happen
In need of support
Continuously trying to access supports
Fighting to have services resumed
Constantly fighting
Doing the right thing
Mental health affected
Nightmare
Parent getting Covid
Sacrificing family life
Self-cancelled services
Adverse effects of COVID-19
Implications for child
Positive impact of COVID-19
Parental feelings and concerns
Negative and positive impact of COVID-19 on child and family
Source: Authors’ own work

or Create an Account

Close subscription notice
Close access options