.... Corresponding author Karen Dodd karendoddconsultancy@gmail.com 29 05 2025 25 07 2025 23 10 2025 23 12 2025 © 2026 Emerald Publishing Limited 2026 Emerald Publishing Limited Licensed re-use rights only Down’s syndrome Dementia Baseline assessment Survey Cognitive...

...Daniel James Acton; Sujeet Jaydeokar; Steven Jones Purpose Education and training is vital in improving age-related care provisions. However, a lack of awareness and understanding of dementia could be a factor in meeting the age-related needs of people. This paper aims to examine the impact...

...Aoife Ryan; Karen Dodd Purpose This paper aims to describe the outcomes of the use of the Quality Outcome Measure for individuals with dementia (QOMID) within a dementia pathway for people with Down’s syndrome (DS). The QOMID is a tool for clinicians to use with 17 outcome domains, each...

...Daniel James Acton; Sujeet Jaydeokar; Steven Jones Purpose A systematic review of the literature was completed to examine the needs of those who provide care to people with intellectual disability and dementia. The purpose of this paper was to develop an understanding of the complexities...

...Bhathika Perera; Lukasz Kamieniarz; Mashal Iftikhar; Solomis Solomou Purpose The Dementia Questionnaire for People with Learning Disabilities (DLD) is one of the main screening and monitoring tools for dementia in people with Down’s syndrome (DS). As part of a quality improvement project...

...Marjan Ghazirad; Olivia Hewitt; Sarah Walden Purpose The use of anti-dementia medication in people with intellectual disabilities has been controversial and requires additional research to assess the efficacy of such medications. An essential part of this treatment (both in terms of research...

...Lesley Thoms; Adelola Idowu; Arjun Nehra; Asit Biswas Purpose There is high incidence of dementia in individuals with Down’s syndrome. Much of the emphasis has been on Alzheimer’s disease as being most prevalent; however, it is apparent that other dementia types are also likely, to which...

...Shahin Shooshtari; Brenda M. Stoesz; Leslie Udell; Leanne Fenez; Natalia Dik; Charles Burchill; Elizabeth Sachs; Verena Menec Purpose Information on the risk of dementia in aging persons with intellectual and/or developmental disability (IDD) in Manitoba, Canada is lacking. The purpose...

...Amanda Bayley; Annika Amoako; Mohamed Omer El-Tahir Purpose The purpose of this paper is to discuss the findings of a service evaluation project of the Specialist Memory Clinic for people with intellectual disabilities in South Wales using the Dementia guidelines published by the British...

...Karen Dodd; Alick Bush; Alexandra Livesey Purpose – Outcome measurement is a key priority for services. There are no papers on specific overall quality outcome measures for people with intellectual disabilities who have dementia. The purpose of this paper is to describe the development...

...Shelley Bevins; Simone Dawes; Athena Kenshole; Kathryn Gaussen Purpose – Despite the longstanding use of music therapy with people with intellectual disabilities and the growing evidence base for using music therapy as a tool to aid behavioural and psychological symptoms of dementia...

... strategies of carers looking after people with ID and dementia. Design/methodology/approach – Qualitative methodology was used to explore coping strategies. Focus groups and face-to-face interviews were carried out. These interviews were transcribed and analysed using thematic analysis. Findings...

... of dementia in an older person with intellectual disabilities. Participants explained what they thought was happening and what action they would take. Data were analysed using Braun and Clarke's framework. Findings Few participants had undertaken any mental health training, and only one in relation...

... to establish functional baselines; and to set up a database to facilitate early diagnosis of dementia in this population. Design/methodology/approach An assistant psychologist used a standardised instrument to screen participants who were identified through contact with health, social, and third sector...

...Hannah Jethwa; Geraldine Cassidy Dementia is a condition that involves inevitably progressive deficits in numerous cognitive domains, including thought, language, memory, understanding and judgement. A difference in behaviour may be noted, as well as overall loss of skills. Dementia is more than...