Chapter 11: Learning Health Systems Ethics Review

Having provided a feasible framework for the use of big data and a learning health system (LHS) in addressing disparities in access to palliative care, this chapter seeks to substantiate the ethical underpinning of that framework, drawing from well-regarded existing sources. The author will also address issues which will likely arise from a successful transition to LHSs such as the nature of informed consent, the impact it will have on medical decision-making in general, and the transformative effect big data and implementation of LHSs will have on existing data sources.