The availability and intelligibility of information for carers of children with a brain injury Available to Purchase

This paper explores the information available for carers of children with a brain injury. It is based on research for an MPhil degree and involved a questionnaire survey of 120 people followed up by structured interviews with 102 of these.The paper looks in‐depth at existing literature and essentially finds that, although a little progress has been made, much remains to be done in terms of both the availability of the information and its intelligibility. Eight key areas are identified by the carers and only one of these (education) is found to be satisfactory by the participants. A further conclusion is reached that local support groups are the best method of providing appropriate and relevant information that is delivered in an empathetic and, therefore, very acceptable form.