...Maria Dale; Dawn Freire-Patino; Helen Matthews Purpose – The purpose of this paper is to describe the development of a psychoeducational support group for informal carers of people with Huntington's disease (HD). Design/methodology/approach – A clinical intervention was designed...

...Nismen Lathif; Muhammad Chishty; Emily Phipps Purpose – Diagnosis of Huntington's disease (HD) is with genetic tests and predictive testing for HD has been available for almost two decades. In the age of advancing genetic techniques, the question arises as to how the predictive tests can affect...

...Jan Wright; Paul McDonald; Hugh Rickards; Jennifer De Souza Purpose – The purpose of this paper is to explore the attitude and understanding of research among people with Huntington's disease (HD) and their carers, as well as their experiences of research participation. Design/methodology...

...Andy Mantell This paper explores the unique blend of social, emotional and practical issues faced by family members of people with Huntington's disease (HD), highlighting how social workers can provide support. It is based on doctoral research into the experiences of carers of people...