Transition: The Experiences of Young People with Learning Disabilities and their Families in England

Transition to adulthood can be a difficult time for all young people and their families, but young people with learning disabilities face additional stresses. Transition for young people with learning disabilities is highly topical, in relation to both policy and practice. Legislation and guidance offer various mechanisms for improving transition, including transition planning, health action planning and Connexions personal advisers. This study of 283 families with youngsters with learning disabilities found that existing legislation and guidance were largely failing youngsters with learning disabilities and their families at transition. There were substantial discrepancies between what ought to have been provided and what young people and their families experienced in practice, and significant difficulties as youngsters moved between children's and adult health and social services. Other difficulties experienced at transition are also reviewed, along with possibilities for improvements in practice.