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Following a series of inquiries and reports, health has become an increasingly high priority for the Valuing People Now programme and beyond, in local and regional health and social care systems. Programmes at national, regional and local levels are now in place and bringing the results described in this article, including health checks and the local self‐assessment framework, but much remains to be done to ensure that positive change is equitable and sustainable across and within the systems and continues to be driven by people with learning disabilities and their families. Changing current health inequalities will continue to require leadership at all levels.

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