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Purpose
– The purpose of this article is to provide a perspective from family carers on the promotion of independence and the prevention of avoidable dependency.
Design/methodology/approach
– Narrative review and discussion.
Findings
– Family carers frequently experience their own or their relatives’ needs being met only when they have reached crisis point. A shift to a more preventive approach, delivered in a personalised and family-centred manner, could transform the experiences of people with learning disabilities and their families.
Originality/value
– Attention is drawn to the importance of strengthening the case for a preventive approach and the role of co-ordinated and strategic leadership in its delivery.
© Emerald Group Publishing Limited
2013
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