...Bethan Collins; Nicole Anneke McGrath; Sabine Maguire Purpose Families of children with disabilities experience many challenges, which Sparkle’s Family Liaison Service (FLS) aims to alleviate. The purpose of this study was to evaluate the impact of the service. Design/methodology/approach...

...Noelle Blackman; Konstantinos Vlachakis; Anna Annes; Sally Griffin; Peter Baker Purpose Research and anecdotal clinical work indicate that complex post-traumatic stress disorder (CPTSD) in families that have children and adults who have a learning disability and/or are autistic may be prevalent...

.... Firsthand accounts suggest the key features of capable environments are communication, valuing families and developing a valued, caring, well-trained workforce. Lived experience in workforce training and peer-support to individuals offer great potential to transform outcomes. Originality/value...

...Jennifer Beaumont Purpose The purpose of this paper is to explore the wider impact of participatory research (PR) on the autistic academic, families and caregivers, and the researcher. Design/methodology/approach This commentary considers participatory methods from the perspective...

...Karen Dodd Purpose The purpose of this paper is to consider the implications for people with Down’s syndrome and their families of identifying those people who are at risk of developing dementia from the research study “Estimating the number of people with Down’s syndrome in Scotland...

... that while the evidence base focuses on the outcomes of orthodox one-to-one interventions, sometimes broader “contextual reformulation” and systemic interventions are called for. However, family- or service-based interventions tend not to feature in studies. Findings – The commentary illustrates...

.... Findings Transition support remains a problematic area. Successful support needs to include a number of elements. Originality/value There is a clear role for the kind of facilitation used in the My Way project as a means of providing creative support to young people and their families. Young...

...Viv Cooper; Cally Ward It is ten years since Valuing People promised a ‘new deal’ for family carers and included specific objectives for involving families in local partnership boards, providing better support for them in their caring role and investing in family leadership nationally, regionally...

...Jill Davies; Hazel Morgan This article describes a project that explored the views, experiences and aspirations of young people with Down's Syndrome and their family carers. Each young person had gone or was going through the transition to adulthood. Following a scoping study, young people who were...