Developing a Procedure for Evaluating Quality of Life for People with Profound and Multiple Disabilities

Quality of life and quality of care have become dominant themes in planning and evaluating services for persons with learning disabilities. There are, however, few conceptual models and assessment instruments that are geared to people with profound and multiple learning disabilities. This article presents an ongoing research project aimed at developing and implementing a valid and reliable procedure for evaluating the quality of life of people with profound and multiple learning disabilities in several European countries. This objective will be realised in three subsequent stages, each of which is divided into several steps. The research project presented has the potential to develop theory as well as good practice in the care of people with profound and multiple learning disabilities.